Mom frantic to save clinical trial that could cure her 3-year-old daughter: ‘The treatment is sitting in a fridge’
A rare, fatal disease called SPG50 affects fewer than 100 people in the world — and one of them is Naomi Lockard, a 3-year-old in Colorado. An experimental genetic therapy has shown promise in stopping the disease’s progression — but it is far too expensive for most families to afford. Rebekah Lockard, the girl’s mother, is on … Read more